TRENTON – In an effort to increase public knowledge of Tuberous Sclerosis and support further medical research into potential treatments, the Legislature advanced a resolution sponsored by Senator Troy Singleton to designate May 15th of each year as “Tuberous Sclerosis Complex Awareness Day”.
Tuberous Sclerosis Complex (TSC) is a rare genetic disorder that is characterized by the growth of noncancerous tumors in various parts of the body, most commonly presenting as tumors in the brain, kidneys, heart, and lungs. During development in the womb, the development of brain matter containing abnormal cells leads to blockage of the flow of cerebrospinal fluid, resulting in the development of epilepsy, developmental delays, and other neuropsychiatric conditions.
“Without awareness for disorders such as Tuberous Sclerosis, it is more difficult to promote the research and development of treatments that are needed to improve the lives of those who live with it,” said Senator Singleton (D-Burlington). “By designating May 15th as a day of awareness, we can increase public knowledge of TSC, amplify the voices of those who live with this condition, and enable the development of new, innovative treatments to improve the lives of individuals living with TSC.”
The resolution, SJR-121, would designate May 15th of every year as “Tuberous Sclerosis Complex Awareness Day” in New Jersey, aiming to promote public awareness of this condition. It notes that TSC impacts roughly one million individuals globally, and 50,000 in the United States alone. With increased public awareness, this designation may assist in discovering more effective treatments to improve patient outcomes.
The Senate and General Assembly passed the resolution unanimously.